During the session the clerk read in-sala amendments to Project de la Cámara 471 that, as presented in the read text, create a registry of people with blood disorders and conditions. The reading assigned custodial responsibility to the Puerto Rico Department of Health (the registry may be administered by the department or delegated to an office that supports rare diseases). The read text emphasized confidentiality and limited uses of registry information.

Key points from the reading (clerk’s text): the bill would:
- Create a registry of persons with blood disorders and blood conditions and designate the Department of Health as the entity responsible to process and analyze the information related to incidence in Puerto Rico.
- Allow the Department of Health to delegate administration to the office that supports and registers persons with rare diseases created by law.
- Specify that registry data be used solely for statistical studies, scientific research and educational purposes and prohibit disclosure that leads to patient identification.
- Require that case reports to the registry remain confidential unless otherwise authorized by law; the reading referenced compliance with federal law (HIPAA) in multiple places in the amended text.

The clerk concluded the reading of the amendments and the House proceeded to consider and approve the amended bill according to the floor procedure recorded in the transcript.

Next steps: The amended bill, as approved on the floor, will follow the statute-enactment steps provided by the legislative process, including any required referral to administrative rules for implementation and confidentiality protections.